Morgan’s space helmet came on Monday while I was at work. Anne called me to let me know he got it and how much he loved it. He should, since he’s been talking about it since forever. Christ, he wouldn’t shut up about it! Anne said he just put it in front of him and smiled for the longest time. As soon as I saw him this morning, he tried to get me to put it on. He doesn’t want to wear it all the time, he just carries it around or puts it down, looks at it and says “It’s a space helmet!”
He freaking loves it!
Today is Sunday, and usually I take Morgan to Inflatable Insanity. This has been a day for doing nothing, though. I’m putting off getting two new tires for my car until tomorrow as well. I don’t know, but I just didn’t feel like going out at all today. I was just too tired.
Morgan’s teachers created a little book called Astronaut, Astronaut to help him with his reading. It has a bunch of sentences that start with “Astronaut, astronaut, what do you see? I see a [whatever] looking at me.” He reads it at kindergarden.
This morning, he wanted some applesauce (one of this favorite things), and he asked me by saying “Applesauce, applesauce, what do you see? I see applesauce looking at me.” He’s so damned cute!
Morgan’s magic room is the spare bedroom in our apartment. We keep all our old crap and empty boxes in that room. I have to clear it out one of these days. For Morgan, it’s a magical room full of cool stuff. When he looks at a toy catalog, he assumes that it is just showing all the things he can get out of the Magic Room. When he sees something he likes, he shows it to me and asks me to get it out of the room.
I tell him it isn’t in the room, but he doesn’t believe me. Sometimes I even let him go in, but he still doesn’t believe me. The room is special. Once I clear it out, we’ll see if he believes me. The question is, do I really want to burst his bubble.
I can usually tell what specific problems Morgan’s teachers are having based on what he repeats at home. Morgan repeats phrases and sentences. For example, this morning he was walking around the house saying “I do not scream at school.” and “No hitting.”
I came upon this recently. Something I wrote down in January 2003 and forgot about on my hard drive.
My family use to go to Canyon Lake in Texas in the summer. I remember as a child that I had mixed feelings about the trips. I wanted to go, since it was fun. I was also filled with trepidation at what my father would pull, or try to pull.
I was usually alright as long as I didn’t go into the water. I couldn’t swim, so the jokes my dad like to play held no amusement for me. My situational awareness was honed to a high degree by the need to keep an eye out for him at all time, and sometimes for my brother. A source of amusement for them was to sneak up on me and drag me into the deeper water. Since I couldn’t swim, you can imagine what was going through my mind.
Whenever I forgot myself and really started to enjoy myself in the water, I would notice them sneaking up on me in the water. It reminded me of those nature films of the alligator slowly stalking an animal drinking on the riverbank. It was bad if either of them was between me and the shore. Usually we were both parallel to the shore, so I could get away.
Now, other than that, it wasn’t so bad. There was a lot to do at Canyon Lake other than swim, and children could wander out of sight of their parents. The lake wasn’t build up extensively. There was beachfront, rocky shores where the forest met the water, a dock for boats, and lots of other attractions. There were usually other kids around that my brother and I could play with. We liked to move around while my father fished and my mother read books.
We took our dogs with us as well, which was always fun. I remember one day in particular when an angry pair of birds kept diving at our German Shepherd because she was too near their nest. She couldn’t figure out why they were attacking her, but she didn’t like it one bit.
They were good times, but I think I would have enjoyed them more if I was able to go into the water without worrying about alligators.
Here’s a link to Ash’s Music Library. Now, she was always the cooler of the two of us. For example, she has an iPod, I don’t. Though we both use Macs, she doesn’t touch Windows machines, while I have to use one at work. Her Mac is faster and has more memory than mine as well. She played RuneQuest before I did. The list goes on.
She’s also pretty cool when compared to the general population (re: iPod and uses a Mac). This just took her to another level.
She has so many songs in her iTunes library it just boggles my mind. I’d say I’m impressed, but anyone who knows me knows I’m easily impressed. A lot of these are from our CD collection, but a lot are also from the iTunes store.
I just needed to say how much cooler she is now than she was an hour ago before she posted this web page.
How’s that, baby?
This is a bit of a rant, so bear with me. Morgan’s MRI was on Tuesday. I took the day off work to go to the hospital with him and my wife. Now, I spoke to his teachers at school and told them he would be out on Tuesday. I also called their absent child hotline. The school set that up so they would know if a child was really out of school or was missing. Not a bad idea. I don’t have a problem with it. I also let the bus dispatcher know that Morgan wouldn’t be riding the bus on Tuesday. So what annoys me is that I have to send a note in to school with him the next day to excuse his absence. I don’t get it, but then I guess I don’t have a bureaucratic mindset. Plano schools are supposed to be the best in Texas, and I believe it, but sometimes I have to shake my head in wonder at some of the things they do.
Rant, part two: We got to the hospital at noon (for a 2 o’clock procedure, more head shaking). When we were checking Morgan in, we found out that this MRI was going to cost us around $230. The lady checking us in said that it was about 10% of the real cost of the procedure. Apparently we have to pay 10% while our insurance picks up 90%. Now that’s a good deal. I know that. It just pisses me of that yet again, we get blindsided with a charge I didn’t budget for. I just have to wonder why no one bothered to tell us. The treatment coordinator must have known. The person who pre-registered us the week before knew. HELLO PEOPLE! A warning would have been nice. Had I known, I would have scheduled it for just after payday on the 15th, when I could have actually afforded it.
Fortunately, that’s the last test as far as I know. I love my son and I don’t begrudge him the tests. We need to know if he has anything other than autism. Still, it would have been nice to deal with people who understand that not everyone has $230 to throw around like it was nothing.
Rant done. I feel much better. Thanks for your attention.
I don’t know when we’ll get his results from the MRI. I’m expecting them back soon. Also, once we got into the hospital and the procedure started, the nurses and doctor were just great. Everything went smoothly and Morgan was in and out by 3:30 p.m. A very pleasant experience all around except for that first part.
For those of you who don’t know me, my son was diagnosed with Autism in June of 2004. We got him in to see a neurologist last week and he recommended we do some tests. So, last Tuesday night we traipsed off to Medical City Hospital in Dallas for an all night EEG.
That was about as fun as picking porcupine needles out of your butt. I felt so bad for the little guy. He had these electrodes attached all over his head, they were glued on tight because he had to sleep with them on. He had a long, long sock over all the wires and covering his head with a little area cut out for his face so he couldn’t get to the electrodes and pick them off.
Needless to say, he was pretty traumatized by the whole thing and let us know he didn’t like it one bit, screaming all the way. My wife and I had to hold him down while the nurse put the electrodes on, put a piece of gauze with a horrible smelling chemical glue over the electrode, and blow dry the gauze to set the glue. The bright spot that Tuesday evening was that he was tired out and went to sleep right afterwards at around 9 p.m.
Unfortunately for us, he woke up at 4:30 a.m. the following morning and wanted the electrodes off! We stayed in his room that night. I slept on a chair while my wife slept on the pull out bed they provide.
We kept him occupied all morning until 9 a.m. when they came in to remove the electrodes. He didn’t like that either…
Just before we left, his neurologist came in and told us the EEG was normal. Hooray!!!
Next Tuesday is the MRI. He’ll be sedated for that, and they’ll take some blood while he’s under for other tests.